Pancreatic cancer: Hard to diagnose, even harder to treat


Pancreatic Cancer’s physical symptoms are not very specific to the disease. They include fatigue, weight loss and loss of appetite. Pat was often tire in October but was gaining weight despite trying to lose it. Diagnosis depends on imaging procedures, such as CT or PET scans or endoscopic ultrasound, but these tests cannot detect small, early-stage of the cancer. One of the reasons it is so hard to detect is because of the way the pancreas is situated, and it doesn’t cause symptoms. By the end of October, Pat was reporting a peculiar, very tender spot just at the join of her sternum and in the hollow under it as well as a “clawing” pain beneath her left should blade. She thought it might be her heart. Lumps in her foot were of more concern.  Visited our doctor November 4th and he was more concerned with the lumps in the legs and sent her to the vein clinic.  That’s when they discovered the blood clots. So, it was right over to Emergency. The emergency doctor was puzzled at why she was having blood clots. He couldn’t see anything in a chest X-ray.  She was put on anti clotting medications. With all this nobody thought to give her a CT scan.  The cancer was too far advanced for effective treatment.

On the 48th anniversary of our first date Pat accidentally took a 10 mg Allegro pill instead of a blood pressure pill and thereby took a total 25 mm Allegro. WHEN TO emergency where during the examination the nurse practitioner detected that there was something funny about her pancreas and ordered a CT scan. Pat had an advanced case of the disease, as the cancer had spread to his liver. Pat was dying!  Doctor said she had two to six months to live. She didn’t make the two months. She died on January 7, 2017.

Why am I rehashing all this now?  Pat wrote “I haven’t really recovered – perhaps never will. To Eric it was a terrible blow. Maybe he’ll never recover, either.”  I think she is right I keep going over it in my mind. Seems to me few cancers need more awareness or research money than pancreatic cancer. While supporters wear purple ribbons during its awareness month of November, they have seen few medical advances in the last 40 years. Stuck with a five-year survival rate, it remains hard to detect, difficult to treat and, compared with other diseases, has drawn little research money. We need a simple blood test for pancreatic cancer like the one for prostate cancer where a positive would trigger tests such as CT or PET scans or endoscopic ultrasound. I understand pancreatic cancer is treatable when caught early; the vast majority of cases are not diagnosed until too late. Five-year survival rates approach 25% if the cancers are surgically removed while they are still small and have not spread to the lymph nodes. I guess what I’m saying is instead of just wearing a purple ribbon in November raise lots of funds. Almost everyone knows someone who has died from pancreatic cancer.  More research is desperately needed.

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Escaping the prison of material things….


I read a passage from Pat’s dairies and found that Pat’s unhappiness and deep depression started a few month’s after I quit my very well paying Ontario civil service job, in 1991. While I was still working and after my mom’s death Pat was relatively happy and content. She even expressed a liking for 214 McCaul and living in the neighbourhood. She was happy because she had, while I was at work and James was at school, time alone to write. That was all she ever wanted – to have plenty of time to write and maybe get published in English. My being home all day and my wanting company on shopping trips and while watching TV robbed her of that time alone to write. Here is one of many entries in her dairy where she complains of not having enough time alone. Sunday September 8, 1991: “I resent Eric wanting me to spend my “spare” time with him, instead of writing. And then I feel churlish and guilty. He really doesn’t have any one thing he’d like to devote himself to. He likes to potter about (but not to cut the lawn, which needs it), go out on little shopping trips (on which he always wants company), watch TV, read the paper and take naps. And he likes me to be near him as much as possible. I have the feeling that this is a problem many wives have when their husbands retire: only I have it fifteen years early.”
This also answers why she stopped writing poetry. Both her desire to write and her Romance Writer Agent were pushing her to write romance novels which publishers kept returning for rewrites. Pat just didn’t have the time to write poetry – a very real loss. But it also cost her happiness and the constant returns cost her self confidence. As I pointed out in “Quiet Love” she should have given up the romance genre sooner and gone back to writing what she loved to read – “stories of adventure, mystery, suspense, and fantasy. Stories about ordinary people who get mixed up in extraordinary trouble. Stories, magical and haunting and sometimes bizarre, stories that creep into your imagination and your dreams — like mail delivered by the Goblin Postman.” Then maybe the poems would have continued to come. She didn’t because my quitting and our selling of 214 McCaul meant we needed a source of income and I was not able to find a library job. Pat really believed her romance novels would be that source. Pat was successful in retraining – getting a journalism certificate and a job in the Publications unit of the University of Waterloo. But this did not result in her getting more time to write what she loved to read. She was writing but now it was articles on U of W. departments, professors and research. She was very good at it but no happier.
So, you see I was at least partly responsible for her depression and unhappiness – didn’t deserve more love poems. This makes me cry out loud and feel very bad. Pat I’m so sorry. I wish for more of the lovely love poems. Pat, you must have been so disappointed in me. Your dreams not mine should have been my priority. Please forgive me. I’m so sorry. Though written in 1972, the poem below kind of summarizes our situation from 1991 to her retirement in 2011 when her and my pensions made it possible for her to live her dream for only five short years.
In Prison with you
by Patricia A. Bow Oct 1972

I tried to pick
the lock with my pen
but the pen
broke in my hand
and all its
blue blood dripped out.
So I used my head
instead
and hypnotized
the guards.
I am still here
but now I can
get out
any time I like.
What stops me is
the fact
that you won’t come.
And I know
you would be lonely.

I take great comfort that Pat’s happiness returned for those last 5 years and neither of us was lonely or a prisoner any more. She was right though about me being lonely without her and never getting over the shock of that diagnosis on the 48th anniversary of our first date! Pat. I love you forever. Lord may Pat evermore dwell in me and I in her. Amen.

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Separation trauma


On Saturday, December 3, 1988 Pat wrote after a three day stay in Toronto General for an operation and on learning of my two sleepless nights: “I think we’ve reached the point in our marriage when separation is a trauma.” Well she was right, the “trauma” occurred every time to the one left at home during the other’s stays in the hospital. And it wasn’t just for operations – I got it when she went to Montreal to visit her dying mother. During my heart attack in 2015 Pat didn’t get much sleep during all the time I was in St. Mary’s. It explains the great loneliness the one in hospital feels at night for her loved one; Pat used to wait for me by the elevator in the mornings before breakfast arrived. I had separation trauma after her death; it is a big part of the Grief Journey. I believe at some point in the 19th year of our marriage we truly became one entity. Our souls became so intertwined, so intimately webbed together that neither of us could tell which was which, and whose was whose. Yes we suffered trauma on separation and death is a separation. At least until I found her dwelling in me and I dwelling in her. Maybe the grief therapists should consider treating Grief as PSTD.

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My Greatest Fear!


Two years after his wife’s death, Vanauken writes: “…I found that my tears were dried. The grief had passed…. There was no sense of Davy’s being there with me, nor any sense that she was in the wind…. There were no more dreams…. This – the disappearance of the sense of the beloved’s presence and, therefore, the end of tears – this is the Second Death.” This “Second Death” is the point of the title of his book, “A Severe Mercy; a story of faith, tragedy, and triumph.”
I fear this severe mercy above all else. C. S. Lewis, after his experience of Joy’s presence, wrote in “A Grief observed”, “It was quite incredibly unemotional. Just the impression of her mind momentarily facing my own…. Yet, there was an extreme and cheerful intimacy. An intimacy that had not passed though the senses or emotions at all…. The intimacy was complete – sharply bracing and restorative too – without it.” His wife, Joy, died less than a year before he wrote this and he had bone cancer himself. He asked his wife on her death bed “If you can – if it is allowed – come to me when I too am on my death bed.” She had promised and I believe the presence he felt was the beginning of her keeping her promise. I think Lewis also did not want “severe mercy.” Unlike Vanauken he needed Joy’s presence and the promise that she would be there holding his hand at the end. He continues “There is also, whatever it means, the resurrection of the body. We cannot understand. The best is perhaps what we understand least.” I probably have longer than Lewis had when he accepted Joy’s presence but not the nearly 40 years from Vanauken’s time of his severe mercy, the second death, to his death. Never-the-less, please God no “Severe Mercy” for me. I need and want Pat’s presence dwelling in me forever as well as the promise of her being with me holding my hand when my time comes.
As I wrote in “Quiet Love …. Eyes to see and words to tell the truths that are most true,” “Patricia and I were lucky enough to discover that quiet, intense love that is basic to life itself; it is seldom found in real life. We had the eyes to see and the words to tell the truths that are most real to each other.” It is the kind of love Cynthia Bourgeault, in her “Love is stronger than Death; the mystical union of two souls,” was describing when she wrote: “In certain, perhaps rare, love relationships, instead of the normal imperative for letting go and getting on with life, there are subtle but clear signs that the journey with one’s beloved continues beyond the grave. Rather than ending, the walk together is only just getting under way….it also happens to real people. I know this because I am one of them.” Well I think Pat and I are also one of them. Right from the beginning we found God in our lives – He answered a prayer of mine when Pat became the first girl to come to Church with me. We made our marriage vows to God and to each other. We vowed to forgive one another, to bear one another’s burdens, to be subject to one another out of reverence for Christ, and to love one another with supernatural, tender, and fruitful love.
In the first few weeks after Pat’s death I stumbled about in the numbness of grief. I felt empty. As Pat wrote in her dairy, “There was a kind of confusion about death itself – it’s impossible to understand of course. Like a rabbit in a magicians’ trick. Where did it go? The body remains, but the real woman has vanished!… I don’t believe that the live soul simply stops existing. It did exist; therefore, it still exists. Where? I suppose one must think in terms of heaven since one must visualize something…. Perhaps it is enough simply to believe the spirit does not die.” We both had read Tom Harpur’s “There is Life after Death” and we are also sure that there is life after death. Harpur wrote “…But I assure you that I am convinced of this as I am of anything in this world: a day is coming when all separations will be over. We will one day be reunited (in the words of the old hymn) with “whom we have loved long since and lost a while.” We will return to the source of our being, not as rivers return to the ocean and are swallowed by it, but as recognizable individuals.”
I am also convinced of the truth of Bourgeault’s experiences described in her book and think Pat and I are on a similar journey to our reunion in the arms of Christ. Bourgeault wrote: “I see the body of hope as a living, palpable, and conscious energy that holds the visible and invisible worlds together. It is the sap, metaphorically speaking, through which flows the higher communion – the sharing of personal love and the building up and unfolding of the wonders between two people. It is what makes possible the communion of substances between two beloved and the continuing growth of their one abler soul even when separated by death. It is the “holy element,” as Boehme would call it, that straddles heaven and earth and makes possible the most intimate connection between these two planes.”
I believe that my three experiences of communicating with Pat in the week after she died were the beginning of an experience similar to Bourgeault’s. It is not something that will end like Vanauken’s experiences. The fact that I have had other such experiences of Pat’s presence, communications, dreams, is evidence that our love is growing and we will reunite in one soul in Heaven. No Severe Mercy is needed or wanted, thank you very much.

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One in Marriage for all eternity


In thinking back to how Pat and I spent our life together, I realized just how little we talked. Talk was mostly about day to day things like: what do you want for breakfast; what did you and James talk about at lunch, is this a laundry day, what do we need in groceries, where do you want to celebrate this anniversary, etc. There was a lot of touching, working side by side on our computers, (Pat wrote that she felt closest to me when we were both working on our computers side by side; I think that is why she now often communicates with me in the haze of waking from sleep on a big white computer screen.) reading side by side, side by side at Tai Chi, and watching TV. But very little talking about the deep issues of life. At Church, we enjoyed the service together often touching hands and meditated together during communion. Yes, we communicated but it was somehow beyond words. Pat said it best: “For you and I are so entwined / that we can read each other’s mind / at times, a simple exercize. / Then comes the stumble of surprise / when, reaching out in haste, I find / the stranger self behind your eyes.” Our love grew ever stronger as did our faith even without the constant chatter some couples constantly insist on. We were happy in our quiet love and in just having each other near. We were most together in our thoughts and minds. Pat wrote a lot of her deepest thoughts down in her dairies and journals. That is how I discovered in researching for “Quiet Love” that she was further alone than I in understanding our love, marriage and faith. Also, being a poet and novelist she was more open to both nature and God. I must think deeply about things, brood over them, meditate on them and wait for my subconscious to come up with the things Pat just seemed to know. Our union into one entity in marriage caused both of us to grow in love and faith. We are still growing. As friends and family saw we were a very together couple. We were in marriage already one entity or at least there was a third entity always present in us together – the one created by the sacrament of marriage. It was and is as if our minds were working out the answers together. Thoughts like these are much more than words, they are feelings, our very soul and LOVE. As a friend recently commented “Love for one’s spouse is the same as love for God.” We absorbed each others’ truths directly, we had in Pat’s words, “eyes to see and words to tell the truths that are most true.” To friends, family, and others, we were probably “cute” (look at those old folks holding hands) and boring. What we have is Quiet Love that is eternal. Again, from that friend, we “live with the memories and the hopes and dreams we create together and hope to share in our eternal life in Christ.” I shall love Pat forever.

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Grief strengthens faith


In Quiet Love, I wrote the following: “I have lost the ability to enjoy all the things we enjoyed together; the ability to enjoy every day’s most common loves by sun or candle light. Now I listen to a piece of music we once enjoyed together and it sounds hollow. I look at a painting we loved together and it just doesn’t move me in the same way it once did. A bright sunny day is not appreciated the same. The atmosphere and food in one of our favourite restaurants just is not as good anymore. A TV show we both looked forward to now brings tears to my eyes. The pleasure of cooking a great meal for supper is gone; it is just food now. I feel like I have lost half of myself….”

In the four months since Pat’s death, I still feel much the same but maybe a bit less intensely. I am melancholy and don’t feel any purpose to doing any of the needed daily chores. Oh, I do them because Pat would have wanted me to but there is no urgency in me.  However, there have been gains – discovering how intensely and deeply we love each other, and that Love continues to grow and deepen after death. The biggest surprise was discovering how deeply religious she was and is – she wanted to be alone on her walks to meditate and pray. This has strengthened my own faith as has finding her homemade prayer/promise bracelet next to her laptop. I now wear it daily. Daily prayer: “Lord let Pat forever more dwell in me and I in her through Christ our Lord. Amen.”  The Eternal promise: Pat, I love you forever!  I am surer than ever that there is life after death and that our marriage is about our becoming a renewed united entity united by LOVE in the arms of Christ.

I still really want to join Pat in Heaven and still occasionally pray, “Oh God let my release be soon! Amen.” But I realize that it is not going to be soon.  Pat predicted in 2010 that neither of us would make it to 2020. Well she was right about herself, just hope she was right about me also.  Like Pat I’ve had serious health problems in the last decade – seven ulcers two bleeding ones that put me in the hospital, high blood pressure for decades but under control, and a heart attack in 2015 that resulted in quintuple bypass open heart surgery.  That is why I thought I would be first to die. Pat died just after her 70th birthday – the Biblical 3 score and 10. I wonder if my surviving these serious health problems means I am strong and will make it to the Biblical 4 score – I much prefer Pat’s prediction obviously. The time of my death is not my choice but Gods.  Wish I was a poet like Pat; melancholy and love result in great poems.

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Love, marriage, life, death, GOD!


In writing Quiet Love, writing for my blog, and posting on Facebook, I have been working out my beliefs on life after death and on love and marriage. I have been reading Sheldon Vanauken, C. S. Lewis, Cynthia Bourgeault, Tom Harper, various essays on the topics found by Google and reading quite a few poets and of course reading Pat’s poems and 48 years of her diaries. In the four months after Pat’s death I have healed somewhat because of this research and my writing about my feelings and developing beliefs and with the help of family and friends. What surprises me most is that Pat came to these same conclusions in her journals long before I ever thought of them. They were in her diaries and poems for me to find. Her REAL Presence was also guiding me to what she had found. Her Christianity was much further along than mine. At times, I felt her annoyance at my not “getting it” and she would snap an “of course I love you” at me or an “of course I’m here in your heart” at me.
Pat often went for walks where she wanted and needed to be alone. I just discovered from her 2016 diary that she usually prayed at the Canadiana Garden Park at Shephard School or the Women’s War Memorial garden in front of the armory. She always took a break there to think about herself and to pray for forgiveness for her sins and relief from her faults. Also from the 2016 diary, she was often up between 4 am and 5 am depressed at what she thought of as her short comings and sins and thinking and praying for forgiveness and solutions. Seems she was on an inner journey much like I have been since her death. There are, between 2007 and 2012, even passages in her diaries where she describes exactly the great grief I went though – am still at times experiencing. I believe it was these times of deep thought and prayer that she came to the conclusions I have been coming to about love, marriage, God and death. In diary entries after writing about her depression she often wrote about her insights. She also occasionally nuzzled me awake to talk about them.
So, what have Pat and I learnt in all this thought, prayer, reading and research? Pat and I believe Christ’s promise that there is a place in Heaven for each of us believers prepared by Christ himself. We also believe the New Testament passages promising we will recognize our loved ones even in their new eternal Christ-like body and that our loved ones will be waiting for us when we get to heaven to help our rebirth into the eternal resurrection body. I believe I saw the resurrected Pat after noon on Friday April 28, 2017 – she was beautiful and radiant.
Pat and I also believed very strongly in the sacrament of marriage. Our marriage in St. Stephen’s in the Fields Anglican Toronto lead into a full Mass. We believe that in marriage two entities are made one by God never to be separated even by death itself. Pat and I are still united – Pat dwelling in my heart and I dwelling in her in Heaven through Christ. In fact, we are made whole again by death. We also both believe that love continues after death and continues to grow every stronger. As described by Pat, though we are two individuals we are still united as we were on earth. We are a trinity – Pat, I and the person that our love is. The third person, Love, is the binding force just like the Holy Ghost in the divine Trinity. Christians have always believed that God is Love and that LOVE is what unites us all in the communion of Saints.
“For you must realize,” says Jacob Boehme, (Confessions) “that earth unfolds its properties and powers in union with Heaven aloft above us, and there is one Heart, one Being, one Will, one God, all in all.” On the Grief Journey, you eventually stop running and simply look in your own heart and are swallowed by the embrace of your loved one in her eternal resurrection body – you are united again in the love of Christ. You realize nothing has changed, you are whole again and nothing, no part of your love is taken away. You continue to grow in love forever. Enduring is part of Christian love, the love which brought Pat and I together in marriage. The end of the great journey is when you discover God has been calling you to become true man and wife united in one eternal resurrection body in Heaven. All you need is true love. I believe in our 48 years together we both dissolved and were born again in our marriage. We remained individuals – Pat’s two touching circles – but our marriage was the wholeness of the us, True Love.
According to the Pontifical Household preacher, Capuchin Father Raniero Cantalamessa, marriage does not come to a complete end at death but is transfigured, spiritualized, freed from the limits that mark life on earth, as also the ties between parents and children or between friends will not be forgotten. In a preface for the dead the liturgy proclaims: “Life is transformed, not taken away.” Even marriage, which is part of life, will be transfigured, not nullified. I take great comfort in this. Pat proved and I believe that LOVE is stronger than DEATH. Christ thoroughly defeated Death.

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Danced with departed spouse…


Woke up just before 5 am for the usual reason. Got back in bed and couldn’t get back to sleep. So, I lay on my back and found a comfortable position with no stress or tension in my body. Emptied my mind so my mind’s eye was seeing only black darkness. Breathed in and out just feeling the movement of my in and out breaths. And repeated in my mind “May Pat every more dwell in me and I in her.” The house was quiet except for the clock ticking and chiming the half hours and hours. A great calm came over me. Then the blackness changed to a light sky blue colour with powder white stylized birds – just like Pat’s favourite jersey. It pulsed in time to my breathing. Shortened the manta to just her name, Pat. A new pulsating colour appeared – a light yellow green moving through the powdery blue like the oil in those old Lava lights pulsed through the water. Blue and yellow forever individual but occupying the same space. I began to think I felt Pat’s presence – that the light blue was her and the light oily yellow-green was me. I was at peace and felt rested. When I heard, the paper being put in my mail box I decided to get up. It was after 7 am. Okay this proves nothing except that I can meditate. However, I believe it was Pat and I; we were doing a marriage dance: you know that feeling, you are dancing inside and have an eternal connection to your loved one and all we have to do is think of them, pray with them to Christ, love them, meditate, live, breathe them in, and they are there again. Love is stronger than Death and Pat and I love each other forever!

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So entwined that we can read each other’s mind


Why do I feel so lonely? I desperately yearn for Pat’s physical company. Oh, I feel her Real presence and I am in communion with her; the result of me dwelling in her and she dwelling in me. There are pictures of her in every room and I walk around talking to her. Why isn’t this enough?
We are born into a physical world and are dependant on our senses to relate to that world. We are bombarded by sight, hearing, touching, smelling and tasting. We can’t cope without at least some of these stimulations from the physical world. They drown out the spiritual; that is why we have so much trouble meditating and communing with God. I am physically alone (except for the friendly new tabby replacing Pooka) but still hear the traffic which draws me out of my meditations. What I miss is the physical her – the her I became dependant on in 48 years of marriage. I am sure Pat understood this when she wished to live the life of a hermit with me beside her. I’m scared to admit it but, she probably would be happier in my present situation than I am: it is very much like the hermit life with the silent, physically unseen and unheard presence of my spouse within me.
Loneliness is being alone when you desire otherwise. I desperately want Patricia – her words, her touch, her kisses, her physical being – back. So, I am lonely. That is the very definition of being lonely. It is a desolate feeling of being left behind, and being all alone forever. There is a Pat sized hole in my heart, which I cannot live with or without. It is all my memories of Patricia which I never want to lose. Those memories are happy memories though I cry.
In our marriage, there was a deep inner sense of a quiet deep love at its centre. It continues as the uninterrupted center of both of us. Our love continues to grow stronger. To the doubter, NO I don’t need to get over my grief and pass on: Pat and I love each other forever, ours is an eternal marriage. Love is stronger than death. Not everything ends in death. Our marriage is Pat and I and US. Marriage is created in the image of God. In heaven, Pat and I will be truly like the triune God – a trinity. Christ’s resurrection did not end his love for the Father, it strengthens the Holy Ghost or so I believe.
Pat’s 12th Anniversary Poem says it all:
I know the scent and shape of you:
I know you all, yet not at all.
I linger with a connoisseur’s delight
over a contour of bone, a texture of skin,
gloating over treasures of silk and ivory
that are mine alone,
and yet no-one’s but yours.

For you and I are so entwined
that we can read each other’s mind
at times, a simple exercize.
Then comes the stumble of surprise
when, reaching out in haste, I find
the stranger self behind your eyes.

Far apart upon the lawn,
two tall trees confront each other
never to touch, ever alone:
yet beneath the grass and stone
intertwined their roots have grown,
so intimately webbed together,
neither one can tell his own.

So with us: which flatly proves
futility of arguments
On which is which, and whose is whose.

We are the one eternal united entity we vowed to become in our marriage vows. Pat and I love each other forever. No I won’t be lonely forever. That will disappear when we are united in Heaven.

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My first after death experience


I started reading Tom Harper’s ‘There is life after death’ his revision and expansion of ‘Life after death’ I had read years ago. Interesting that so often spouses that have an after-death experience and/or feel the presence of their departed, begin their account with the statement that they were “always very happy together.” They do not mention their love though you can see it in the way the experience is described. I believe great love is required to have such an experience. The other thing many of them have in common is they are usually awakened from a sound sleep. Such was the case with my first experience of Pat’s presence. I had stretched out on the living room couch planning to nap until the news came on. I fell into a sound sleep but soon felt someone standing bent over me and kissing me on the lips; it caused me to wake up and I clearly saw Pat. I tried to touch her and kiss back but the image started to fade and she was gone. I felt good about the experience and knew it was really her comforting me. I think she was forgiving me for being in another room not holding her hand when she departed. It was NOT a dream but a very real experience of life after death. I also think I can be sure that when I die she will be there holding my hand to help me across. Pat, I love you forever! Thank you.

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